Ah Spoonie life, aren’t you lovely? Christmas is one of my favourite times of the year buuuut my Fibro doesn’t always play nicely. If you’re a regular reader though you know I’ll poke fun at myself when I can because you have to laugh at the ridiculousness of it all.
So, I thought I’d have a little bit of fun with this one because I know a lot of my Spoonie friends are feeling the same
1. I’m going to pace myself this year
Personally, I alway start with the greatest of intentions, I’m going to chill out, have rest breaks etc. That said though, I’m not the best at pacing myself at a normal time of the year – let alone the time I’m allowed to be super extra.
2. If one more person asks me if I’m ‘better yet’ I may start throwing the Sprouts
WHAT PART OF CHRONIC ILLNESS DON’T YOU UNDERSTAND.
3. I wonder if I could make an advent calendar for my meds to make them more festive…
Always looking for ways to be more festive!
4. Can I put a new body on my Christmas list?
Don’t say you haven’t thought about it…I know I have. New central nervous system? Come to mumma!
5. How do I know/ am I related to so many people?
Seriously though, everyone wants to meet up at Christmas for a catch up or a coffee…because it’s Christmas/the holidays.
Of course you’re (mostly) grateful that there are people that love and care for you but trying to fit them all into the 24 days before Christmas on limited spoons is tough.
6. Yes I have a mobility aid. Yes I’m XX years old. Yes you are in my way.
I don’t know about you but when I’m out in the hustle and bustle of Christmas shopping and I take my walking stick it feels like everyone is either giving a quizzical glance or simply ignores it and me, particularly on the tube, where I need to sit down.
7. How many times can I say no to invitation before I seem like a Grinch?
This happens a lot when your non-spoonie friends want to hang out/ go drinking/ go for dinner etc. I’m usually weighing up my energy levels so I can work, socialise, clean my flat etc. I end up feeling like a TOTAL Grinch minus the cool outfit…
8. Naps, all of the naps, PLEASE
Need I say more?
9. My New Years Eve includes pjs, blankets and falling asleep way before midnight
I haven’t been ‘out out’ on New Years…ever. At most I’ve gone to a house party where there’s no pressure, no queueing for drinks and you can move around. That said, my perfect New Years is definitely on my sofa in cosy PJs with a pile of chocolate and my laptop.
10. It’ll be more relaxing next year…maybe
But I’m yet to have a relaxing next year!
Are there any other things my fellow Spoonies would add? Let me know below.