Living with a ‘disability’

As far as I was concerned when I applied to university I wasn’t disabled, I’d never been disabled and I just had to get on with my life in the best way possible.Little did I know I’d suffered with at least one disability my entire life. Now I’ve written before about being Dyslexic but I haven’t really gone into detail about how it can impact on my life at uni or otherwise. The majority of people here and at home that are friends with Ali and I are shocked and sometimes don’t believe me when I say I’m registered with the Dyslexia and Disability department, they ask me why and sometimes still make their own assumptions about if I’m ‘really’ disabled.

It’s a funny word that I never really use about myself. When most people hear the word disability they think of something physical, a wheelchair, a walking aide, a white stick are all a lot easier to understand. Depression and Anxiety isn’t visible and I have gone for years with some people not having a clue. As with the Dyslexia, I went nearly 15 years in the education system without it being picked up that I was not only Dyslexic but severely Dyslexic and not just stupid as I had thought. Both of my ‘disabilities’ are mental, I explain a lot that it’s not uncommon for someone with a mental health condition to wish it was physical, people understand that.

So I wanted to use today’s blog to talk about some of the common misconceptions about disability as a student and how my life is impacted by BOTH of them.

1. People with Dyslexia only have problems reading or writing

This is a HUGE misconception that simply needs a little bit more education. Whilst I was at school it was thought I couldn’t be Dyslexic as I was in the top class for English. Although my CAT scores were lower and I constantly struggled with little things like paragraphing, punctuation and spelling it wasn’t really looked in to. Even at uni some of my seminar leaders admit they know nothing about Dyslexia and if I ‘try a bit harder’ I might pick up these things. Dyslexia has a massive spectrum for me my weaknesses are processing information, spelling (I will change a whole sentence if I can’t spell a word sometimes), grammar, basic skills and the speed in which I do things.  

2. Depressed people don’t have fun, they’re constantly unhappy

This just isn’t true for the majority of depressed people. There are flickers of light even in your darkest days but because of the way you’re thinking it’s just harder to see them. I’m out of the darkest part but on a low I find it hard to think positively. With gentle encouragement and time there can be good days for someone with Depression. We can be fun too!! 

3. You’d know if you were dyslexic

I found out I was dyslexic at 19 years old studying for a degree in English Literature. I knew I struggled a lot but it was my tutor who suggested getting a test. A lot of things make sense now as to WHY I struggled. 

4. You don’t need a fancy new laptop from the government for uni

There is a lot of jealousy over disabled students because we get DSA (Disabled Student Allowance). I have been insulted many times saying that I don’t need help. I do get help in the form of a dyslexia tutor and a mental health mentor. I got a laptop, programming, a printer and a voice recorder to help me with my studies because sometimes I struggle. There are people who play the system to get what they want but it’s not all of us!! I hate being accused of being a ‘scrounger’ by people who spend all their student loan on booze. I’m really grateful that I got the help I did because it makes life SO much easier!

5. Anxiety is just a part of life

I was actually told this after my diagnosis by a member of staff who I believe thought I was lying. Yes anxiety is a part of life but living with it is different. The most minor things will make you fret and worry constantly, losing concentration, sleep and generally making you quite poorly. That is anxiety, trust me.

6. It’s all attention seeking

No. Just no.

7. You can’t have a learning difficulty, you’re smart

8. Why do you get money? It’s not really fair is it?

Going back to number 4, I don’t get direct payments but some people do to help them cover costs. I have an amount for extra books, ink, etc. Just think if you became disabled wouldn’t you find that help a relief? I certainly do, it means I don’t put unnecessary worry or strain on myself or those around me and can get the help I need.

9. How do your disabilities affect your day to day life

More than you may think! In terms of dyslexia, it effects my reading, writing, spelling, memory, processing things quickly (which makes exams horrible), the time it takes for me to do things, my driving (I’m on my 4th test now) which really bugs me. I’m learning to adapt to it. My Depression/Anxiety makes me a worrier, can put me on a low where I’m really unmotivated, can make me irritable, tired an honestly can mean I’m not a great person to be around. Occasionally I’ll have to miss a day of class because I’m feeling that crappy. I’m lucky that I have a good group of people who understand around me.

10. Is it hard?

Yes. It can be but I wouldn’t change it…well most of the time anyway. I find ways to get around things, to smile and carry on to the best I can. Now I understand why I struggle with certain things and for me that’s great! I can learn how to fix them 🙂

So there it is, hopefully some questions have been answered. If you have any more PLEASE! comment below or tweet me!

On a Mad One

Amy has a phrase for whenever one of us gets angry/upset/annoyed and needs to vent until we calm down we go on a ‘mad one’. Now in the last few months there have been various forms of this and today it hit me, big time. I haven’t had a break or a rest since the beginning of January it’s been at least 4 weeks of non stop work, so today my brain just said no. Throw in room issues, bus issues, a disgusting smelling kitchen, arrogant show offs from earlier in the week and generally irritating people and you’ve got how I feel right now. I know people will read this, some may think I’m talking about them and be offended…if that is you think about why you’re offended, then you’ll get to how I feel when I write this. I ended up in the university Starbucks with Amy having a little heart to heart and she just made me feel ok , she reminded me that I am a part of something and going up to Kingston Hill just lifts my mood 90% of the time. 

I hate feeling low, it’s one of the worst things in the world and sometimes a ‘mad one’ is just a part of a low. I’ve tried to be positive today and when I was with Amy it was ok, I didn’t think about everything that was bothering me too much and I just talked it out. The problem is when I’m upset and alone or when I’m surrounded by people who just don’t help. So I’m spending this evening locked in my room listening to You Me At Six and trying to get this assignment finished. What people don’t tell you is no matter how much you love uni (and I honestly do) being in halls is hard work. Not every flat has a magical connection and sometimes you lock horns, not in a big way but when you want to slob out and just eat crappy food all day you feel this pressure, well I personally do. I generally find it quite hard when I’m having a bad day, feeling like someone is constantly looking at what you’re doing. The bottom line, it’s not like you’re at home, you have to think about a lot more, you can’t want around in some of your PJs because they might be ‘too revealing’, you don’t wear make up and people think your ill! 

Sometimes all that compared with a bad day is just a little too much. I’m trying to look forward though, to next year. I don’t know if I’ve mentioned it but Ali and I will be living together so it makes life a little easier. I just feel so comfortable around him, I can do whatever the hell I want and not feel like I have to think about it or discuss it later. I guess what I’m tring to say in this blog post is that honestly I struggle sometimes living with a whole block full of people and not feeling close to any of them and it’s just a part of life. Plus, going from somewhere where you feel like you belong, the band, Hannafords etc to being completely alone isn’t the nicest feeling. Now I’m shaking off this ‘Mad One’ I’m hoping that I can get rid of it and go to uni feeling a bit better about everything and just get on with my work before going out with Amy tomorrow night! 

Ups and Downs

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How I entertain myself and Ali on my bus journeys (that’s my tongue not my bottom lip)

 

Today the inevitable happened, tired, full of cold and stressed out I finally hit a low. I know it’s been coming it’s like a storm you can feel coming and I was silly enough to have thought it had gone away. I had a dip the other night with Ali but I put that down to drinking too much (never.again.) today was different. I was up and ready (after my hot water wasn’t working, that was strike one), today was freshers fair! I’d heard so much about it and honestly, it didn’t live up to the hype. Many of my other freshers have said the same thing too many people in one small place. I couldn’t breath and I could hardly move at all which made me feel awful as well as some slightly pushy 2nd and 3rd years being around. I signed up for a few of the societies that I really wanted to Music, Rock and Journalism, I’m planning to pop back early tomorrow to try and see if there is anything else I want to join in with. The thing is I don’t want to sign up for to much and regret it later so I’m just sticking with my 3 and may spend some time with the student’s union. With all the chaos I just felt lost and alone and needed to cry. I panicked and I felt like I wanted to go home (perfectly normal freshers feelings) then started to go on a low. As with many other times I tried to relax and ended up falling asleep during a visit to Ali’s this afternoon and I woke up feeling much better.

After a low I try and think about it and work out why but do you know what? Sometimes there isn’t a reason, it’s just part of a really crappy illness that I have. No one knows if I’ll get rid of it for good, it could go away for years and come back but I try not to think about that. The anxiety is the same thing but in my heart I think I’ll always be a little bit anxious. I am accepting it and I want to leave university after changing people’s perceptions on mental health issues that we’re not all ‘nutters’. Unfortunately due to my low mood I couldn’t face the disability meeting which really upset me  because normally I try and work around it and I do but I suppose I have to accept that a lot is changing and moving. Things will be worse at the moment and I hoping I can move on but I do hate it and I can’t always be positive, it’s just the way things are. I did get around it though with a trip to Kingston Hill, a nice shower, some home cooked food (thanks for the frozen meals mum!) and a lovely night in with Becky. Overall tonight has been a good end to a particularly rough day. Here’s hoping tomorrow is ok!